EDUCational Resources

Support that goes beyond treatments

In addition to developing therapies for orphan disorders of the central nervous system (CNS), Noema Pharma is committed to connecting patients and their caregivers to information and others living with similar orphan disorders. 

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Tuberous Sclerosis Complex Resources

Tuberous sclerosis complex (TSC) is a rare genetic disorder that causes tumors to form in many different organs, primarily in the brain, eyes, heart, kidney, skin, and lungs. The aspects of TSC that have the greatest impact on quality of life are generally associated with the brain: seizures, developmental delay, intellectual disability, and autism. However, many people with TSC are living independent, healthy lives and enjoying challenging professions, such as doctors, lawyers, educators, and researchers.

For additional information about TSC, please visit the Tuberous Sclerosis Alliance

Trigeminal Neuralgia Resources

Trigeminal neuralgia (TN), also called tic douloureux, is a chronic pain condition that affects the trigeminal (fifth cranial) nerve, which carries sensation from your face to your brain. TN is a form of neuropathic pain (pain associated with nerve injury or nerve lesion). 

For additional information, please visit the Facial Pain Association

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Tourette Syndrome Resources

Tourette syndrome (TS) is a neurological disorder that becomes evident in early childhood or adolescence between the ages of 2 and 15 and is defined by multiple motor tics and at least 1 vocal tic lasting for more than a year. Tics characteristically wax and wane, and TS is defined as part of a spectrum of tic disorders, which includes transient and chronic tics.

For additional information, please visit the Tourette Syndrome Association of Australia and the Tourette Association of America.