Educational Resources
Driven by Patients
At Noema, we collaborate closely with patients, families, caregivers, and healthcare professionals to ensure that real-world experiences, needs, and priorities meaningfully shape our work—from discovery through development. Through our community partnerships, we also work together to educate and raise awareness across stakeholders, advance research, and build impactful support initiatives.
Trigeminal Neuralgia Resources
Trigeminal neuralgia (TN) is a rare, orphan neurological disorder affecting approximately 140,000 people in the U.S. and is marked by sudden, severe episodes of excruciating, electric shock–like facial pain originating from the trigeminal nerve. This chronic, neuropathic pain condition can severely limit daily functioning and often leads to substantial emotional and psychological distress.
Due to its extreme severity, TN is sometimes referred to as the “suicide disease,” with nearly one-third of patients reporting suicidal ideation. This remains a critically underserved community, with little meaningful innovation in nearly 60 years. Many patients are undertreated and urgently need safer, more effective therapeutic options.
For additional information, please visit the Facial Pain Association.
Tourette Syndrome Resources
Tourette syndrome (TS) is a chronic, childhood-onset neurodevelopmental disorder characterized by multiple motor tics and at least one vocal tic lasting for more than a year. Symptoms typically emerge between ages 2 and 15 and often wax and wane over time. TS exists on a broader spectrum of tic disorders that includes both transient and chronic tic presentations.
Despite its prevalence, TS remains a high-unmet-need condition: tics can significantly impair quality of life, and stigma and bullying are common. Current treatment options often fall short—approved antipsychotic medications are poorly tolerated and carry stigma, while behavioral therapies can be burdensome and offer limited efficacy.
For additional information, please visit the Tourette Syndrome Association of Australia, Tourette Association of America and Tics and Tourette Across the Globe.
Menopause-Related VMS Resources
VMS (hot flashes & night sweats) are prevalent, persistent, and life-disrupting symptoms of menopause. In the U.S., roughly 27 million women are currently in menopause, with an additional 1.3 million entering menopause each year. VMS affects up to 80% of women and typically lasts an average of 7.4 years.
In addition to hot flashes, menopause-related hormonal changes can also disrupt mood (85%), sleep (94%), weight (59%), and energy levels (77%), significantly impacting quality of life and daily functioning. Despite this burden, nearly two-thirds of women do not use hormone therapy, often due to safety concerns or personal preference, creating a substantial need for effective, well-tolerated non-hormonal treatment options.
For additional information, please visit the World Stuttering Network.